There are different opt-outs available to you if you do not wish your data to be shared in an identifiable form.
| Type Opt outs | Description and purpose | How to Opt Out |
|---|---|---|
| Withdrawing consent Information given directly to the ICB | Where we have received information from you directly using your consent, you can withdraw this at any time. If there is an overriding legal obligation for us to hold or share your personal information. Meaning we cannot comply with your request, we will provide you with full details of the reason why. | You can withdraw your consent at any point by contacting the ICB contact details below. |
| Local Opt outs Information shared with the ICB for secondary use purposes | To help us manage the local health and social care system, the ICB may use anonymised or pseudonymised data that is shared with us by other health and social care services and ICS partner organisations. As this use of data is not for your direct care this is called secondary use of data. Risk stratification An example of this is Risk Stratification. This use allows us to provide the services that are needed, in the right areas, helping to promote good health and social care and reducing health inequalities. Further information on Risk Stratification is available within this notice Risk Stratification Research Your information is shared with the ICB and pseudonymised, and linked with other information within out Data Hub, once it is pseudonymised the ICB are allowed to use it for Commissioning purposes, planning and evaluation of services, research and evaluation of conditions. | If you do not wish for your personal data to be used for Risk Stratification, or Research you can choose to exercise a local opt out by contacting the ICB as below. Address: NHS Norfolk & Waveney Integrated Care Board 8th Floor, County Hall Martineau Lane Norwich NR1 2DH Email address: nwicb.contactus@nhs.net Telephone Number: 01603 595857 |
| Local Opt out Information shared between Health and Social Care organisations for direct care purposes | Shared Care Record Shared Care Record (ShCR) – Norfolk and Waveney ICS (improvinglivesnw.org.uk) The ICB facilitate a service call the Shared Care Record – where health organisations securely upload specific health data which can then be accessed securely by other health and social care providers. If you do not want your information shared in this way the ICB facilitate these opt outs. The ICB do not have access to your health information but can facilitate your opt out choice. | If you do not wish for your information to be accessed for the purpose of your direct care in this way, you may opt out by emailing: nwicb.contactus@nhs.net with your: • Full Name, • Date of Birth and • NHS number. Please be aware that this may create clinical risks as health and care professionals will not see your records as easily. |
| The National Opt out – Research can be applied to Information provided to ICB from organisations that provide NHS services. | NHS England share your health data collected from organisations such as Hospitals with the ICB to enable commissioning and planning of services to meet your needs – this information is pseudonymised. The information can also be used as part of research if you allow this. National Opt Out means that your information cannot be used for research but is still used in a pseudonymised format by the ICB for commissioning purposes. | You are able to opt out from the use of your personal data for research and planning purposes. This is known as the National Data Opt Out. See NHS pages for more information National Data Opt-Out – NHS England Digital. Your choice to opt-out will have no negative impact on your individual care. You can check or update your opt-out preference via the following link: https://www.nhs.uk/your-nhs-data-matters/manage-your-choice/ |